It was brought to my attention today that I've been slacking on the blog.
Lots going on but I cannot recall it all, nor do I have the energy at the end of my day to sit and type about it.
I guess what I'd say for now is that I really need a break. I need a break from this chaos in my body. I don't know how to do that without taking a break from other things. Slowly, I guess I'm getting there.
Let me explain. I've had an enforced break from driving as I've been nearly constantly dizzy for the last three weeks. And not a just a normal kind of dizzy...this is like that ride they used to have at Great America where the floor fell out from underneath you and you stuck to the wall. I used to think that was fun. Now I don't really understand why I thought so. Maybe it was because it only lasted for four minutes. I can't think of anyone in their right mind who'd want to stay on that ride for three weeks.
Challenges and updates:
1) My insurance company is refusing to allow the Dr. to perform the PET Scan he wants to perform. Therefore I will have to endure yet another spinal tap. Whoooo Hoooo! I meet with my neurologist on the 22 of this month.
2) The neuropsychological evaluation came back and basically as you all know - I'm crazy. Yep. I have that in writing now...well kinda. No, actually the summary of that exam was, in short consistent with what is typically seen in moderate to severe flares of lupus. I guess that's what they were checking. I really don't remember much except that they did note some deficits in memory, processing, and then something called psycho-motor slowing. Yep. That's the story.
3) Blood levels from my last blood tests show improvement. So that's good.
4) Transportation. Though I love that I have people who are willing to do it, I really hate having to get driven everywhere.
5) I'm worn out completely and going to bed now. I don't really want to leave until I have all this figured out. Can someone make that happen please?
Please just keep praying for me. My energy level is really not good and I cannot keep going at this rate if anything is going to change for the better.
Back in college, in 2004 when blogging was hardly even a thing yet, I was here. Blogging before blogging meant anything to anyone. You can look in the archives for my past writings, but it was much more like a journal in the past. When we started fundraising, I messed around with the idea of launching something new for this new phase of our journey but actually hated that idea. I am a sum of all of my life and so much of it is here already. So I'm keeping it here. At least for now.
My main focus these days is blogging about our newest journey into the bizarre and wonderful world of gestational surrogacy. Posts dated 2013 and forward will trend heavily toward that journey. I don't promise everything I write will be about though. There might be other things that sneak in occasionally.
Please come along our journey with us. As the saying goes, "The more, the merrier!"
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