According to my calendar, and hopefully to yours, tomorrow begins the 27th week of the year. It begins the seventh month of the year. And the year, if I haven't totally lost it yet, is 2007. Have I ever told you I like the number 7 a lot? I am not superstitious or anything. I just like it.
This 27th week of the seventh month of the year 2007 brings for you an update on my overall health:
I quote a friend of mine from an email a few weeks ago to say this, "Stupid lupus." Has a nice ring actually. And really, it is just stupid.
This go-around with the flare ordeal is really kicking my butt. Got to go spend some time in the hospital this past week, which was really a blast! The highlights were when my sister brought me Quizno's and when Brooke and Wade and I played Scrabble (J FART?) the day I got to go home. That was Tuesday.
And now for the next month I will be going to doctors - at least one a week. Some new ones, some I know well. Just trying to get it all sorted out. Trying to figure out why my head isn't working. Seriously, until August I have at least one appointment per week. And they say I'm supposed to minimize my stress? Right. Okay. Sure.
I really think my brain may be broken. Even though some of you don't buy that, I maintain you don't have to live in here. It's getting scary...and I don't like it. Good thing some of the tests will help figure that for sure. News from the doctor yesterday can be broken down into three categories:
Good news:
My blood levels are actually returning within normal ranges so in another week I get to start decreasing the steroids. Yay!!! Amen!
Bad news:
Can't go on the retreat for work coming up. Which is a big bummer. This disease really gets in the way of fun. Stupid lupus.
Interesting news:
Got a "persons with disabilities" parking permit application. Handicapped parking spaces for 6months. There's some mixed emotion there.
I pretty much cannot go outside for anything longer than a half-hour in high sun times for the rest of the summer. And even then, never without sunscreen.
Have to talk to the neurosurgeon who put in the implant for my headache back in 2003. That seems like so long ago. But there's concern that that may be what's causing the cognitive problems. Wouldn't that be ironic? Helps one problem and creates another. What will be done if that's the issue? I shall wait to see what he says.
This will all make for a very interesting seventh month of the year 2007. Tomorrow begins the 27th week. I'm sure it will hold a good deal of surprises.
Back in college, in 2004 when blogging was hardly even a thing yet, I was here. Blogging before blogging meant anything to anyone. You can look in the archives for my past writings, but it was much more like a journal in the past. When we started fundraising, I messed around with the idea of launching something new for this new phase of our journey but actually hated that idea. I am a sum of all of my life and so much of it is here already. So I'm keeping it here. At least for now.
My main focus these days is blogging about our newest journey into the bizarre and wonderful world of gestational surrogacy. Posts dated 2013 and forward will trend heavily toward that journey. I don't promise everything I write will be about though. There might be other things that sneak in occasionally.
Please come along our journey with us. As the saying goes, "The more, the merrier!"
No comments:
Post a Comment